It's Saturday afternoon. The sky on Saturdays is mute, but resplendent. Below, in this convulsive thing that we call humanity, runs through the multitude of schedules, emotions, hunches. I feel like listening closely to that melody by Lisette Álvarez “One more Saturday, about Puerto Rico, one more Saturday…”
Approximately two out of every 20 million people are affected by this congenital disease that slows down the development of the sixth and seventh cranial nerves in the fetus, so from birth the person has difficulties speaking, eating, hearing, moving the eyes (may present strabismus) and other parts of the face; most of the time he can't smile either.
The struggle of the everyday
The idea of telling her story came in 2014 when she lived in Mexico City. It was not until 2021 when it materialized in a text that protects the experiences, sad and happy, that have a special nuance as they are detailed by someone who got used to living with a disease that prevents him from gesturing and clearly expressing his emotions.